Our Story

The FACS Association was established in November 2012.

Founded by myself and colleague Janet Williams, FACSA are a not for profit support group providing information, support and help to children and their families diagnosed with the medical condition FAC-SYNDROME.

The FACS Association is a sister organisation to In-FACT, both working together to ensure children with a diagnosis of FACS get the best care, support and advice.

FACS can affect a child to varying degrees ranging from dysmorphic facial features, cognitive impairments, spina bifida, cleft lip and palate, autistic spectrum etc

Anti convulsant drugs have been prescribed for epilepsy since 1912. There are 3 main medications KNOWN to affect the foetus (baby) during pregnancy which are:
PHENYTOIN (1938)
CARBAMAZIPINE (1963)
SODIUM VALPROATE (1978)