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Emma Murphy and colleague Janet Williams are co-founders of this Association.  It was co-founded November 2012 in order to help and support families affected by the condition.  We have 2 offices, one based in Manchester and the other one in Blackpool. 

We are there to help give advice, comfort and support to parents whose children are affected by FACS.

We work with a Medical Team to update parents on the latest facts, figures and information.  Any information needed about any of the symptoms of FACS are available to buy in booklets, and parents can join membership so they are aware of latest information and have the constant support available.

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